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Reimbursement via funds because: giving up is not an option

Because the CloudCuddle bed tent is not reimbursed by health insurance companies, as a parent you sometimes have to be creative. And persevere. Reimbursement through funds can be an option. Mother Saida talks about her journey from pillar to post. With a happy ending in the end.

Saida and Nuri. A proud mother with her son. Like so many mothers and sons. When they walk the streets together, you don`t notice it: Nuri looks like an ordinary boy of six, but mentally he has the level of a child of one and a half. He sees no danger, runs into everything and needs to be protected 24/7, even at night. So he sleeps in a bed box and Saida can never leave home for a night. Fortunately, she was finally able to purchase a CloudCuddle with the help of her neighborhood team and with a contribution from the Bishop Bluyssen Fund.

From pillar to post

“I lost count,” Saida explains. “How many times have I explained what it means when you can never leave home? Too many times! To tell you that it`s not an unnecessary luxury if others take over your care for a while. That a simple visit to family and friends is part of life. To be able to refuel and sustain care. Not to mention vacations. Many people don`t understand how much impact it has on your life when you have to care for someone 24/7. They simply push your question to another counter and send you from pillar to post.”

Help from community team to apply for reimbursement from fund

“After the umpteenth rejection, I presented my situation to the community team in Leidsche Rijn. There the idea arose to approach funds, including the Bisschop Bluyssen fund. This is a social organization for financially weak groups with a specific request for help. Together we filled in the forms and submitted the application. You have to be able to substantiate your application and provide medical statements. And very important: you have to be prepared to provide full insight into your finances, including bank statements. I did that and I haven`t regretted it for a moment. I am extremely grateful for the gift from the Bluyssen Fund.”

Network getting smaller

“With Nuri, you can`t see at first glance that he has a disability. As a result, I always have to explain everything more often. I know you can`t compare things and I`m genuinely happy with everything I do get, but it sometimes feels twice as hard. Having to fight that battle over and over again. I`m certainly not alone in that, although sometimes I feel quite alone. My network is getting smaller because people stop when you have a chronic need for help. But Nuri belongs to me and I will always take care of him. Giving up is really not an option.